It takes everything away from you
The kettle is whistling non stop 24/7 in the head, and in the ears at 80 dbs, the brain won't calm down. The sounds of a jet engine roaring has taken place, sharp piercing knifes being stabbed into the ears, and the head. It’s not recognized in this world on a decent level at all, as it is so rare, severe Tinnitus & Noxacusis, (Pain Hyperacusis). The patients are the ones who need to advocate, and push for a cure while being exceedingly sick, while people who have normal hearing, are not interested in dabbling into the health condition that much at all, because there is rarely any recognition for it, which means not much money. Thank goodness for the folks at Hyperacusis Research who are trying to help us to live again, with the work their researchers are currently doing.
The patients who are severe, sometimes get labeled as having a “Mental Disorder”, when it is in fact the other way around, and the mental distress all develops because of the large "physical" impact that takes place, that people other than the sufferer just cannot understand, and hopefully this article can transpire the right message.
The patient had dreams, and goals before it all started. To start a family, already had a good paying job, have kids, and travel the world. Just because severe Hyperacusis & Tinnitus kicked in, all of those dreams got smashed, and the patient tries to explain to the people around what is happening to them, but the condition is invisible, and normal hearing folks do not get how badly the patient is affected, their behaviour should be the major eye opener for others. The mental distress, the flying of the handle, the asking for help from people around, constantly, wanting to talk to folks a lot. Some people if they have parents, they help, which is great, because they need it or a spouse. What if the patient has no parents or no spouse?, and disability doesn’t pay enough to have a stable solo home for them, to live comfortably and not having to tell people to be quiet all of the time?. It’s a nightmare NOBDOY WANTS. The patient worked in the hospitality industry serving some of the world's biggest celebrities prior making 50K a year, and now grossing just over 1k a month on disability from having Lymphoma Cancer, and the treatments this person had to cure the cancer started Hyperacusis & Tinnitus, it’s not enough to take care of this ailment, but at least it is something. The patient needs a quiet home, to be able to maintain and not get worse, and for some people it does not happen, some folks become homeless because they cannot find the right accommodations, and the people around them don't believe how severe they are, because they cannot see it, and get sick of hearing from the patient. Imagine being homeless and camping out in the world, and noise is all around you, and every noise causes piercing, stabbing, burning pain to the ears and the head?, the patient wouldn’t last a day, and probably would commit suicide.
Where to go?, who to ask for help?. Nobody on planet earth can cure Noxacusis & Tinnitus, yet. The patient is alone, and isolated from the world, lives a life online talking to people on the World Wide Web, and not in physical form, because the sounds of even a fork touching the table causes sharp, burning, piercing pain. The patient was a social butterfly before the conditions started, and had a lot of friends and support. But now having to isolate from the world and not being out engaging with folks, people have forgotten about them. It’s not the patients fault for having the conditions, the patient tries to reach out to family and friends for emotional, and other supports. The patient feels irritable, when people don’t take what they say seriously, and people kind of rub it off as “Just a bit of ringing in the ears, sensitive to some sounds”, “Put some ear plugs in, and some headphones on”, a loved one or a friends says. The patient cannot tolerate most sounds even with hearing protection on now because the conditions are at a severe and catastrophic level, that is about 1 in 5 million maybe. The patient is in pain even In complete silence, it’s absolute torture, and even people being in prison have a better life. People in prison can sit in their cell, read a book and count the number of days when they will be leaving. No need to worry about the fork dropping, someone’s voice causing them intense pain to make one hurl.
The patient is tired, cannot take anymore, just wants family, friends and others to be of support, so they can feel like they still belong in the world. Their peers get irritable, when the patient reaches out, and if the tables were turned the people who do not have Noxacusis & Tinnitus would be doing the exact same thing, they just might be worse, who knows. Severe Tinnitus and Hyperacusis will drive anyone insane, even Alan Watts & Sadaguru would go bonkers, and they are some of the worlds best buddhists and healers. The patient is strong, the patient looks for the small things in everyday life to bring them just a little joy. A friend suffering from arthritis or another physical pain disorder, says they have so much physical pain, that it's hard to take care of everyday activities. That person can still drive, that person can walk around freely, the person is in pain, but the person can wander around, and not worry about the sounds of the car motor causing them pain, and if it does, they may tailspin and crash and die, and maybe into people as well. The person would not be able to work doing a physical job anymore, cannot tolerate their kids or pets voices, and eventually isolates themselves in a dark hole in the house to hide from every possible sound that would cause them intense pain. This is exactly what is feels like for the sufferer, it's a nightmare on elm street times fifty, Friday the 13th Jason is constantly torturing you 24/7 with his bloody blade.
The sufferer cannot get any help, has gone the mile to speak to the best doctors in the country, and in the world, and still no help. Some of the treatments that help others too a degree don't work for others. Everyone’s body chemistry and pathology is different. So what works for one, may make the other worse, this is usually with medications, and with less severe symptoms “Sound Therapy”.
All in all, it’s complete torture, as you can tell from described, nobody deserves to be put through this, and the patient deserves help from all angles. Family, friends loved ones, and most importantly the medical system needs to take Hyperacusis & Tinnitus a lot more serious, before more people eventually take their lives from these God awful conditions.
Thank you for listening, so much love, and let’s all try to help make this world a better place, one day at a time.
David Vance
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