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Showing posts from April, 2023

It takes everything away from you

It strips you of everything in life worth while, when it gets to a severe and catastrophic level, there is no going back, unless a serious miracle happens. The only miracle we know of, is a cure, to regenerate hearing, to help the systems of the ear to return to normal, or even almost normal would be ideal to live a somewhat purposeful life again. The kettle is whistling non stop 24/7 in the head, and in the ears at 80 dbs, the brain won't calm down. The sounds of a jet engine roaring has taken place, sharp piercing knifes being stabbed into the ears, and the head. It’s not recognized in this world on a decent level at all, as it is so rare, severe Tinnitus & Noxacusis, (Pain Hyperacusis). The patients are the ones who need to advocate, and push for a cure while being exceedingly sick, while people who have normal hearing, are not interested in dabbling into the health condition that much at all, because there is rarely  any recognition for it, which means not much money....

Written Documentation From Physicians Regarding Hyperacusis & Tinnitus

Ever have trouble with family, friends, loved ones, the workplace etc. taking you seriously when you tell them that Hyperacusis & Severe Tinnitus is truly debilitating?. For me personally it's been a struggle, has been for five years, and still to this day it's hard to convince people who don't have the conditions how horrid it all is for one to handle. It's literally a nightmare, that nobody wants to have.  My current ENT (Ears Nose & Throat Doctor) knows how debilitating it is for me, because he see's me at my worst. I go into the office, sit down the hall away from the regular public seating area waiting for my appointment, because it is far too noisy sitting with everyone else, even with hearing protection on. He actually listens to me which is good, and recently I needed a letter written for my disability medical review, and he wrote out in detail how awful my conditions really are. My ENT states the following below, which describes that I have tried ev...