Skip to main content

The Road That Doesn't End / Quiet Hobbies

 



Living with Hyperacusis & Tinnitus from my personal experience seems like “the Road That Doesn’t End”. I have had both conditions for five years now, and nothing so far has made me any better, other than protecting my ears with hearing protection and staying in “quiet” to the best of my abilities.


Some folks (family, friends, loved ones) can express to the sufferer that the pain that they experience is just temporary and it does not last forever. I would like to think this, and I used to tell myself this in the beginning stages of my illness, but unfortunately it is not true, and this goes for 90 percent of the cases I have encountered in the last five years. 


I think it’s about manageability to some degree and keeping busy, keeping the mind off the conditions somehow, but for some sufferers their Hyperacusis & Tinnitus is so severe that their illness is all that they can think about, it’s pounding 24/7, there is no escape. Focusing on a book is too hard, watching a movie with closed captions is too hard, even texting can become exhausting after a while, and this is what some people who don’t have Hyperacusis & Tinnitus do not understand I believe, family friends and loved ones, and it is hard for the sufferer to transpire, when the correct information about these conditions is not online anywhere written by professionals. It’s because the research is still being done, there is no cure for Hyperacusis & Tinnitus (yet). I don’t think the cure will be coming anytime soon, and this is why it is the never ending road for now.





It’s about keeping busy as I mentioned - quiet hobbies if people can manage. Painting, colouring, drawing, writing, photography, online design, reading, watching TV & movies with closed captions or a bit of sound if you can handle, knitting, quiet cooking, gardening etc. Even a hobby can be connecting with other sufferers to support one another, raising awareness for Hyperacusis & Tinnitus as well. There are things to do, but it’s the illness that keeps going and doesn’t end, so it's about passing the time until' there is a cure. 


For some Hyperacusis & Tinnitus gets better over time, for some it gets worse. Every case is unique in it’s own way from what I have seen over the years. It all depends on the person’s body & brain chemistry & pathology. For most the ailments do not fully get better, ever, and that is what some people other than the sufferer do not understand, and they need to understand. Again, the patients are the ones experiencing the conditions, so they know what is best for them. 


Thank you for listening, so much love!. 


David Vance. 


Comments

Post a Comment

Popular posts from this blog

Three Survivors of Cancer Discuss Their Struggles With Tinnitus and Hyperacusis, two Conditions They Consider Far Worse

  Three Survivors of Cancer Discuss Their Struggles With Tinnitus and Hyperacusis, two Conditions They Consider Far Worse Written by J. D. Rider  David Vance, Susan Caswell, and Kathy McCain fought the dreaded condition cancer in various forms. It's the diagnosis a person hopes to never get. But even so, they testify that cancer was easy compared to tinnitus and hyperacusis, an aural-twisted duo whose savage decrees equate to endless traps and prison life. Who took their lives and everything and blew them all to smithereens. To preface this article, these are THEIR stories. THEIR thoughts. They're talking from experience. And not to stink on cancer, but in THEIR situations, tinnitus and hyperacusis have been far, far worse. Cancer was scary, horrible. We all know it is. It takes lives, squashes hope. But so do these aggressors, as suicides are a frequent climax to tinnitus and hyperacusis.  As we cover their impact on each individual, they'll explain why these ear traps a...
Post a Comment
Read more

It's Not Fair

It's not fair that we have to live with Tinnitus, and the rare Hyperacusis, both conditions are very detrimental at any level. The afflictions are not researched enough from lack of funding, so there is no cure, or no manageability (yet). The patient has to go through so much just to get by every single day, and not a single soul understands, but us. They say that you need to live in the patient's shoes to really get it, and this goes with anything. When asked by family or friend's how we are doing, sometimes we may need to lie, and say that we are doing "alright", when really and truly we would like to say, that we are doing "absolute garbage". In my experiences, I have told people in my circle, that I am tired, can't do this anymore, need help etc. When this happens, I get "Well it's like any other health condition, take a pill, and manage yourself better", or they will stop talking to me all together, so sometimes, I need to lie to k...
Post a Comment
Read more

Community Art From The Heart

Community art from the heart is a new project series that is different and outside of the box, created by JD Rider & David Vance. We will be showcasing creative imagery of people in the community, and writings about them all in one, to hopefully help to lift people’s spirits, and others as well. Our first edition to the series is of Amelia from Ontario, Canada. A great writer, artist and more. We hope you all enjoy!.  So much love as always!.  Next up we have, Travis. A man once on a beautiful life journey, but then some of life came crashing down on him, and landed him with severe Tinnitus & Hypercusis.  We love you Travis!.  Thirdly we have Kelly, she is strong in her faith, tough as nails, and has a big heart. JD Rider does this writing on this piece, and David Vance on the graphic. Thank you so much Kelly for being you, and for your kind and loving spirit, you help to make this world a better place!.  Up next we have Destinee!, she is a very spe...
Post a Comment
Read more